Patient-Centered Approach in Treating Thymoma
Life at 40 years old wasgood forAmara MacPhee. She’d lost about 40 pounds, was eatingwell, enjoyed spending time outside, and, even with aܲprofessional life, was able to carve out time for aڱdance HIIT (high intensity interval training)esa week.
“I had a very active lifestyle between work, seeing friends, and family,” Amara says.“At the time[2016], I was in the best shape of my life.”
ThenAmaranoticed that she wasstrugglingduringafitness class.
“I had trouble breathing and keeping up, which was unusual for me,” she says. “My breathing was labored.I was wheezing and had a dry, hacking, uncontrollable cough. Coughing spells seemed to last forever.”
Check Up with Primary Care
Wantingto be well for an upcoming, out-of-town wedding,Amarawent to her primary care physician,Meredith F. Lash-Dardia, MD, as soon as possible.
“Dr. Lashheard the wheezing, checked my breathing, and suggested I get an x-ray,” Amara recalls. “’This will be quick,’ I thought. ‘I will have the x-ray, go back to see Dr. Lash, and maybe receive a breathing treatment and a prescription for an inhaler. Piece of cake.’”
When Amara returned to Dr. Lash’s office after the x-ray, Dr. Lash asked where Amara’s husband, Alex, was. Amara didn’t understand what was happening, as Dr. Lash showed Amara the x-ray on her phone, usinga pencil to outline an abnormal mass.
Stunned—and still without a definitive diagnosis—Amara underwent an emergency CT scanandblood draws.
Dr. Lash calledthat nightwith results.
Diagnosing theThymoma
“The CT scan showed alarge mass the size of an orange,or small grapefruit,wedged between my lungs and ribs,” Amara describes.
Dr. Lash scheduledan appointmentfor Amara to seeNasser KhaledAltorki, MD, Chiefof the Division of Thoracic Surgery at New York Presbyterian-Weill Cornell Medical Centerandprofessor of cardiothoracic surgery.
Despitetheir anxiety about theappointment withDr.Altorki,Amaraand her husband felt reassured by the kindness and warmth they experienced at his office.Heperformed athorough examination,thenscheduled a biopsy to confirm the diagnosis.
“The staff was also caring and generous in their demeanor during the biopsy,” Amara remembers. “And then I went home and rested, and didn’t get the results until six days later.”
Thankfully, the mass—calleda thymoma—was benign, but would need to be removed.Never having experienced more than stitches from dental work, Amara was overwhelmed by the idea of a surgery and a week in the hospital.But Dr.Altorkiand his staffhelped Amara and Alexunderstand the procedure.
“They repeated themselves multiple times when I didn’t understand a procedure or what was about to happen,”she says.
Road to Recovery After Surgery
Although Amara was disoriented and uncomfortable immediately after her surgery, her road to recovery had started with seven days in the hospital. Her post-operativediscomfortbegan to incrementallyimprove. Amara startedphysical therapy, whichincluded walks on her hospital floor that gota biteasier each day.She found herself relearning the basics.
“It was humbling to learn how to do the simplest oftaskson my own,” Amara says. “Get out of bed, get dressed, get to the bathroom to brush my teeth and freshen up. Walk again.”
When her first long, post-surgical week was over, Amara went home to rest, recover, and walk when she felt ready. Two weeks later, she went for an x-ray to track her progress andlearned how successful her surgery had been.
“I was lucky,” she explains. “Dr.Altorkiwas able to get the entire tumor. It was benign, had not spread, and I didn’t need any radiation or chemotherapy.”
Her continued recovery included CT scans after another two weeks, at the three-month mark, and each year, along with follow-up appointments with Dr.Altorki. Four years out, Amara’s gratitude hasn’t waned.
“How do you say, ‘Thank you,’ to everyone involved,” sheasks. “I couldn’t count the number of doctors, nurses, physician assistants, physical therapists, schedulers, radiologists, lab workers,andfacilities team members I interacted with during that time.Everyone who helped me was kind, patient, and helpful.”